Gillian is doing well. Still not drinking near enough. Which is ok because it's nice having her G-tube during cold and flu season. She had her monthly labs drawn today. We should get the results tomorrow. We have scheduled her one year kidney evaluation. It's on December 10th. She will be getting an IV hooked up and some purple stuff ran through her every so often. I don't remember what the test is exactly called, but I do know radiology does it. I guess the purple stuff going through her kidney can tell her function. They talked about doing it before transplant but decided it would be to hard on her old kidneys. There is no biopsy scheduled unless this test comes back funny. We are hoping for great results and I really have no doubt that they wont be because we have had absolutely no problems but a few hydration problems.
Gillian is still loving school once she gets there. It's still a chore to get her up and going. She goes on and on about how she's going to miss me. Then when we get to school the teacher has to peal her off of me. LOL.. Once I leave though the teacher has told me she is fine. She is still in her swim class too, but I have to say she has failed her first class 3 times now. She's on her 4th try now. She has a fear of putting her face in the water. I think grandma and grandpa Irons have decided if she fails again they will take her out and put her back in dance class. Which I know she will love. That was one of her favorite things. I hated taking her out of it, but money was tight. I'm sure most of you know how that is.
As for Grace, she is still in the NICU. All we are waiting for is her to start eating. She loves sleeping and doesn't want to wake up long enough to eat. Her goal is 2oz every 3 hours and she takes anywhere from 20-45ml's. Usually on the lower side. Although today she did take all but about a teaspoon at one of her feedings. She has to start taking 75% of her feeds at least 2 days in a row before they will discharge her. Right now they are putting all the extra milk in through a NG tube.
She had some labs ran this morning for her kidneys. Her electrolyts looked good and her BUN was 22 her Creatinine 1.2. Not really what I was hoping for, but better than a 2 which it was at when she was 3 days old. Once she is discharged we will be taking her to STL children's where Gillian goes. We will probably have a apt for Grace on December 9th the day before Gillians one year exam. They will do lab work and an ultrasound of their own. The Dr. in STL isn't convinced that she has polycystic kidney disease. I'm told by STL that when you do a ultrasound as early as they did on Grace her kidneys are so small that polycystic kidneys disease is misdiagnosed quit often. So he's pretty sure they are dysplastic just like Gillian's, but only time will tell.
That's it for now. I will let you know how Gillian's labs are and when Grace gets to come home. :)